Motor Neurone Disease
Motor Neurone Disease
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- Motor Neurone Disease (MND) is the name given to a group of diseases in which the nerve cells (neurons) that control the muscles degenerate and die.
- MND is a slowly progressive disease in that it gets steadily worse over time.
- MND causes increasing disability due to muscular weakness, generally without mental impairment or incontinence.
- Early symptoms are mild and include muscle wasting, muscle weakness, fasciculations (muscle twitching), difficulty swallowing and with speech, muscle cramps and spasms.
- In some cases symptoms are widespread from the start but in most instances the disease starts in a localised fashion becoming more generalised as it progresses.
- There are different types of MND and symptoms vary from person to person. Patterns of weakness, the rate and pattern of progression and survival time are also variable.
- There is no single test for MND which makes diagnosis difficult.
- Because of this diagnosis may take some time.
- Diagnosis can be assisted through a range of tests, some which eliminate other conditions eg; nerve conduction tests.
- The causes of MND are not yet known but this is the subject of on-going worldwide research.
- Most cases occur spontaneously though some are hereditary (about 10%).
- MND is uncommon but not rare. Recent statistics estimate there are approximately 1,200 people in Australia currently diagnosed with MND and about 400 new diagnoses each year.
The average age of onset is 50.
There are a range of treatments for MND aimed at reducing the symptoms and improving the quality of life for people with the condition.
A person with MND will usually require assistance from a number of health care professionals including a GP, neurologist, occupational therapist, physiotherapist, speech pathologist, psychologist, home care nurse and social worker.
Treatment requires an integrated, multidisciplinary approach.
Most patients with MND experience little or no pain.
There is neither cure nor prevention for MND at this time but worldwide research is providing encouraging results.
In most cases intellect and memory are not affected by MND, nor are the senses of sight, hearing, taste, smell and sensation.
Further Information and Support
Motor Neurone Disease Association of QLD
P O Box 259, Corinda QLD 4075
Tel (07) 3372 9004 or Freecall 1800 777 175
Fax (07) 3278 9871
Motor Neurone Disease Association of SA
302 South Road, Hilton SA 5033
Tel (08) 8357 0245 or Freecall 1800 777 175
Fax: (08) 8357 0265
Motor Neurone Disease Association of TAS
PO Box 379, Sandy Bay TAS 7006
Freecall 1800 777 175 or 1800 806 632
Motor Neurone Disease Association of VIC
265 Canterbury Rd, (PO Box 23) Canterbury VIC 3126
Tel (03) 9830 2122 or Freecall 1800 806 632
Fax (03) 9830 2228
Motor Neurone Disease Association of WA
Centre for Neurological Support
The Niche, B/11 Aberdare Rd, Nedlands WA 6009
Tel (08) 9346 7355 or Freecall 1800 777 175
Fax: (08) 9346 7332
Motor Neurone Disease Research Institute of Australia Inc
PO Box 990, Gladesvillw NSW 1675
Tel (02) 8877 0990
Fax (02) 9816 2077
British Brain and Spine Foundation
Reviewed by Dr Dominic Rowe, PhD FRACP, Department of Neurology, Royal North Shore Hospital, Australia