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01 Nov ALZHEIMER’S & OTHER NEURO-DEGENERATIVE DISEASES
Project Summary: Frontotemporal Dementia (FTD) is a common early-onset neurodegenerative disorder in adults aged 45 to 64 years. It can be subtyped into behavioral-variant frontotemporal dementia (bvFTD), clinically defined by...11 Dec Huntington’s Disease
...VIC 16 Wakefield Street, Hawthorn VIC 3122 Tel: (03) 9818 6333 www.huntingtonsvic.org.au Huntington’s Disease Society of America www.hdsa.org National Institute of Neurological Disorders and Stroke www.ninds.nih.gov Huntington Study Group www.huntington-study-group.org...
26 Oct MND / ALS & other Neurodegenerative Diseases
...(unpublished) identified a younger age of disease onset was associated with a longer delay to diagnosis. A common statement by families once a diagnosis is confirmed is “we are relieved...11 Dec Narcolepsy
...sleep has been demonstrated clearly. Usually, it is done after a sleep study. The test consists of four 20-minute opportunities to nap, which are offered every two hours throughout the...21 Jan Vegetative State
...validated, families have reported benefits from arousal regimes, such as those implemented by Dr Ted Freeman (eg Coma Arousal Therapy). This intensive therapy involves family members taking the patient through...
16 Oct Vestibular Disorders
...transgenic mouse model that displays characteristics of human EH (the PhexHyp-Duk mouse). Overall, we aim to provide for the first time, a comprehensive examination of the physiological, mechanical, morphological and...11 Dec Prader-Willi Syndrome
...about the latest clinical trials for PWS and support and resources for people living with this disorder. Email info@praderwilli.org.au praderwilli.org.au National Institute of Health – USA www.nlm.nih.gov/medlineplus/praderwillisyndrome.html Prader-Will Syndrome Assocation...
22 Feb Crisis in Care: Australia Faces Unprecedented Migraine Medication Shortage
...specialists from around the world to provide free, unprecedented access to the latest science in migraine and answer the most difficult questions for patients in desperate need of relief. To...
16 Mar Patient Stories & Resources 2022
...usually be able to refer you to someone, but factors like location of the neurology practice, cost, or communication style might lead you to look into other practitioners. If you’re...26 Mar Grant Program FAQs
...program. Clinical trials of sufficient size to provide meaningful results are expensive and commonly sponsored by pharmaceutical companies, and usually run for a number of years. We can provide only...
16 Oct Alzheimer’s and Other Neuro Degenerative Diseases
...shows they have little in common with human AD brains. Our approach is different. We assume the most valid way to model AD is to recreate, as closely as possible,...11 Dec Multiple System Atrophy
...of people living with Parkinson’s or Atypical Parkinson’s (PSP, MSA and CBS). Phone: 1800 644 189 www.fightparkinsons.org.au/atypical-parkinsons www.fightparkinsons.org.au/i-am/psp-cbs-msa-treatment-professional-support-overview/ National Institute of Neurological Disorders and Stroke – USA www.ninds.nih.gov/health-information/disorders/multiple-system-atrophy Worldwide Education...11 Dec Rett Syndrome
...7077 or 0418 561 796 Email rettaust@bigpond.com.au International Rett Syndrome Foundation www.rettsyndrome.org National Institutes of Neurological Disorders and Stroke (USA) https://www.ninds.nih.gov/Disorders/All-Disorders/Rett-Syndrome-Information-Page Rett Syndrome Australia rettaustralia.com Reviewed by Padraic Grattan-Smith, Sydney...09 Mar Useful Links
...A personalised card to assist people with disability and health conditions in the community. nationalassistancecard.com.au BrainLink – a Victorian based service that is dedicated to improving the quality of life...10 Dec Alzheimer’s Disease
...Free Helpline 1800 100 500 www.dementia.org.au Alzheimer’s Society – UK www.alzheimers.org.uk healthdirect: trusted health information and advice online and over the phone (1800 022 222), available 24 hours a day,...23 Feb Rare Brain Disorders
...However, the question of disease rarity has been debated in the scientific community. One study broke the categorisation down into three categories (2): Borderline-common (6-9 in 10,000 people or 0.06-09%)...
11 Aug Multiple Sclerosis
...patient, but MS is typically classified into one of several common forms of MS. Relapse-Remitting MS (RRMS) This is the most common form of MS, and usually how the disease...27 Dec Spasmodic Dysphonia
...affects men and women of all ages, in all walks of life. Interruption of free flowing speech can profoundly influence social and professional interaction and emotional well-being, and cause feelings...10 Feb Alzheimer’s Award
...in the chemical biology of neurodegenerative diseases, especially the discovery of drugs and drug targets for the treatment of Alzheimer’s disease (AD). AD is the most common neurodegenerative disorder and...16 Mar Day 4: All About Concussion & Acoustic Neuroma
...Jamie Beros giving an overview of brain injury and Dr George Opie sharing some updates on the latest research. These diseases and injuries affect many Australians – whether they experience...11 Dec Down Syndrome
...24 Harrow Avenue, Magill SA 5072 Tel (08) 8365 3510 www.downssa.asn.au Information The National Down Syndrome Society (USA) www.ndss.org Medline Plus Health Information – Down Syndrome (USA) www.nlm.nih.gov/medlineplus/downsyndrome.html Reviewed...18 Jan Minimally Conscious State
...the likelihood of further improvement. While not empirically validated, families have reported benefits from arousal regimes, such as those implemented by Dr Ted Freeman (eg Coma Arousal Therapy). The therapy...
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