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Locked-in Syndrome International Conference 2022

June 13, 2022

The Locked-in Syndrome International Conference is the first event hosted by Hope Unlocked. Hope Unlocked is a new society for Locked-in Syndrome (LIS) sufferers, their carers, friends and families, plus professionals in the field.

The event is free and will be held on Zoom. Researchers from across the world will present international developments in the field of LIS treatments, which can support patients and attempt to ‘unlock’ the locked in. You can register via the link below.

Locked-in syndrome is a rare neurological disorder in which patients are unable to move anything except their eyes, despite being fully conscious. It is an incredibly disabling and isolating condition, and feelings of isolation have been exaggerated by the pandemic. The problem is that fellow sufferers are spread around the world and independent travel is out of question always having to be accompanied by a carer making the costs of travel prohibitive.

The Locked-in Syndrome International Conference is an opportunity to meet fellow patients and learn about new assistive technologies and treatments. You can see the full schedule of webinars below.

  • 9.15am – 10.00am – Dr Kate Allatt (Host), Introduction & presentation
  • 10.00am – 10.30am – Coralie Graham, RTF- recovery research
  • 10.30am – 11.00am – Phil Kennedy MD PhD, Neural Signals – implant research
  • 11.00am – 11.30am – break
  • 11.30am – 12.00pm – Aurore Thibold, Coma Science Group
  • 12.00pm – 12.30pm – Dr Kate Allatt (Host), Question and answer session for all morning presenters
  • 12.15pm – 1.15pm – break
  • 1.15pm – 1.45pm – Mariska van Steensal, Utrecht University – Current Implant research
  • 1.45pm – 2.15pm – Femke Nijboer, Attitudes to LIS in society
  • 2.15pm – 2.30pm – break
  • 2.30pm – 3.00pm – Ian Foulger, Jabbla – assistive technology
  • 3.00pm – 3.30pm – James Brinton, – Assistive technology
  • 3.30 – 4.00pm – Dr Kate Allatt (Host), Question and answer session for all afternoon presenters

All times are in GMT. For any further information, please contact the organisers at


June 13, 2022


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LIS Conference Team
Brain FoundationThe Brain Foundation is the largest, independent funder of brain and spinal injury research in Australia. We believe research is the pathway to recovery.