Share your story
Margot Chiverton
Read Margot's story >My story is one of loss, which is often the case for people with my condition, dystonia. A person with dystonia may have lost their beloved cross-country skiing, their marathon running, their job ... For me it was the ending of my music career.
Kylie McKiernan
Read Kylie's story >I think it’s important that people know what brain tumours can do. I had no idea that I could lose so much functionality – it might have been my naivety but maybe if I had known, I would have been more prepared.
Dominic Noonan-O’Keefe
Read Dominic's story >Living with B6 toxicity and the subsequent motor, sensory and autonomic nerve damage has changed every aspect of my life. It struck during what should have been a joyful time - early parenthood - and made even basic tasks feel overwhelming. Recovery has been slow and unpredictable.
Why Share Your Story?
By sharing your journey, you help others feel less alone and contribute to greater awareness and understanding.
- Create connection with others on similar journeys
- Inspire hope in those newly diagnosed
- Contribute to community awareness
- Help break down stigma through understanding
How We’ll Support You
Every story matters, and we’re honored to be a platform where these important narratives can be shared.
- Respectful guidance throughout the process
- Final approval before publishing
- Option to share anonymously if preferred
- Professional editing assistance if needed
Ready to Share?
Whether you’re living with a condition, caring for someone who is, or remembering someone you’ve lost, your voice deserves to be heard.
Simply fill out the form below or email us at info@brainfoundation.org.au. Share as much or as little as feels right – this is your story to tell in your own way. We’re here to listen and help your voice be heard.
Frequently asked questions
1. What happens after I fill out the form?
A member of our team will be in touch with you via email or phone to confirm that your submission was received. Usually we will be in touch within a few weeks, but this may take longer during busy times of the year.
2. Where can I read other patient stories?
You can find other patient stories under the ‘Patient Stories‘ category on our blog. We also sometimes share patient stories on social media or in our newsletters.
3. How will my privacy be protected?
Your personal details will remain completely confidential and will not be shared with any third parties. You will have the opportunity to review the final article before it is posted on our website, and you can leave out any personal information that you aren’t comfortable sharing.
The Brain Foundation is dedicated to funding the next generation of Australian research into brain disorders, diseases, and injuries, with the ultimate goal of advancing diagnoses, treatments, and patient outcomes.There is no cure without research.